Utprøving av et online intervensjonsprogram for ungdom med utseenderelaterte utfordringer

Du finner mer informasjon på vår informasjonsside www.ungfaceit.info og på prosjektets Facebook-side.

Nyhetsbrev, desember 2019 (PDF, 2 sider)

Prosjektansvarlig: Kristin Billaud Feragen
​Prosjektperiode: mars 2019-september 2023

Deniz Zelihić er ansatt i prosjektet som PhD-kandidat. Johanna Kling er ansatt i en post doc-stilling knyttet til prosjektet.

Prosjektbeskrivelse Ung Face it - (engelsk)

Online psychosocial support for young people with appearance
concerns due to a visible difference: A randomised control trial (RCT)
An estimated 1 in 44 people have a condition that affects their appearance
(www.changingfaces.co.uk), also known as a visible difference. A visible difference can have a profound impact in a society with a massive emphasis on appearance, especially during adolescence, when appearance is the greatest contributory factor to self-esteem. A visible difference may be the result of injuries (burns, accidents), treatment (cancer), or congenital anomalies (birthmarks, craniofacial conditions). For those who have an appearance that attracts staring, questions, or teasing, life can be difficult, and trigger body dissatisfaction, low self-esteem, self-consciousness, and unhealthy coping strategies that may impact on health-related quality of life, friendships, school work and aspirations. Innovative, costeffective, accessible, and specialised interventions are therefore required.

Based on a successful adult version, the Centre for Appearance Research (University of the West of England, Bristol, UK) has developed an online intervention for adolescents with appearance concerns, aged 12-17 years, which has been translated into Norwegian
(www.ungfaceit.no). With 7 weekly sessions (each take 45 minutes to complete), Ung Face IT provides easy access to specialist advice and support via a home computer, using information, videos, peer support, and interactive activities. It provides advice, teaches coping and social skills, hence strengthening psychological adjustment to a visible difference.

A pilot study (2016-2017) has investigated the feasibility and acceptability of Ung face IT. A systematic RCT evaluation of the Norwegian version is the next step to test the
intervention's potential as an available intervention tool. Ung Face IT could potentially
address unmet needs, provide a cost-effective tool to reduce the need for “face-to-face”
psychological and surgical/medical services, and contribute to make online health care
available for young people with a visible difference.


Et pilotprosjekt ble gjennomført 2016-2018, finansiert av Nasjonal kompetansetjeneste for sjeldne diagnoser (NKSD). Forskningsmidler til et større prosjekt ble bevilget fra Norges forskningsråd i oktober 2018, slik at programmet nå kan prøves ut mer systematisk og på et større utvalg. Pilotprosjektet ble utført i samarbeid med brukerorganisasjoner som Debra Norge, Iktyoseforeningen og Norsk Craniofacial Forening. Disse foreningene er nå også involvert i den større studien, i tillegg til mange andre foreninger.

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