Transition to National Centre for Rare Disorders (NSSD)

Nasjonalt senter for sjeldne diagnoser, (NSSD) continues the critical work of building competence, spreading knowledge, and supporting equitable access to diagnosis, treatment, and care for individuals with rare disorders in Norway. 

The transition process will continue throughout 2025 and beyond, ensuring that ongoing operations and activities are maintained while aligning with the updated mandate set by the Norwegian Ministry of Health and Care Services. 

Temporary Use of Current English Name 

While the centre awaits its official English name and updated logo, expected in spring 2025, we will continue to use the existing name, Norwegian National Advisory Unit on Rare Disorders (NKSD), for international communications. 

Focus Areas 

 The new centre’s goals include: 

• Increasing accessibility to knowledge and digital resources. 

• Expanding focus from single rare diagnoses to larger disease groups. 

• Strengthening collaboration with healthcare providers through professional networks and shared expertise. 

• Supporting healthcare professionals, patients and caregivers, with comprehensive, coordinated information. 

For More Information 

Please note that some materials may still reflect the old name, and not all content may be fully updated. However, we are committed to keeping stakeholders informed about updates and developments throughout this transition.  

For any inquiries, please contact us at: 

Email: sjeldne-diagnoser@ous-hf.no 

Phone: +47 23 02 69 76 

Thank you for your understanding and continued support as we embark on this new chapter.