About NevSom – Norwegian Centre of Expertise for Neurodevelopmental Disorders and Hypersomnias
The aim of a national centre of expertise is to disseminate and develop professional knowledge and competence within its expert area and contribute to equal health services. NevSom does not provide individual patient care. The centre’s expertise includes two diagnostic categories: neurodevelopmental disorders associated with rare conditions, and primary hypersomnias originating in the central nervous system.
Neurodevelopmental disorders
Neurodevelopmental disorders are behavioural and cognitive disorders that arise during the developmental period that involve significant difficulties in the acquisition and execution of specific intellectual, motor, language, or social functions. Although behavioural and cognitive deficits are present in many mental and behavioural disorders that can arise during the developmental period (e.g., Schizophrenia, Bipolar disorder), only disorders whose core features are neurodevelopmental are included in this grouping. The presumptive etiology for neurodevelopmental disorders is complex, and in many individual cases is unknown.
Hypersomnias
Hypersomnia means increased sleep or increased sleepiness. NevSom specializes in the three hypersomnias narcolepsy, idiopathic hypersomnia and Kleine-Levin syndrome. These rare brain disorders are characterised by an inability to regulate sleep and wakefulness adequately.
Activities
Our most important activities include supporting professionals, conducting research and teaching. We also devise or translate guidelines, information materials, and occasionally act as consultants for Norwegian health authorities. NevSom leads and participates in regional, national and international professional networks, and collaborate with healthcare providers, researchers, and patient organisations.
A list of our scientific publications are available at OUH - NevSom (ous-research.no).
Special assignment on swine flu epidemic and Pandemrix
NevSom has a specific assignment to follow up on those who developed narcolepsy after the swine flu pandemic and the Pandemrix vaccination in 2009-2010. The assignment includes developing a medical quality registry for narcolepsy, conducting research, and educating patients and their relatives on how to cope with the diagnosis.
Organization
NevSom is part of Oslo University Hospital, the Division of Paediatric and Adolescent Medicine, and located at Ullevål in Oslo. The centre is part of the National Centre for Rare Disorders (NSSD), which consists of nine national centres of expertise and a coordinating unit.
Contact information
Office: +47 2301 60 30
Opening hours: Monday - Friday: 08.00 am -15.00 pm.
E-mail: post.nevsom@ous-hf.no (Do not send any personal information via e-mail.)
Visiting address:
Oslo University Hospital, Ullevål
Kirkeveien 166, Oslo
Building 31A, 4. floor (accessible also by elevator)
Postal address
NevSom – Nasjonalt kompetansesenter for
Nevroutviklingsforstyrrelser og hypersomnier
Oslo universitetssykehus
Ullevål
Postboks 4956 Nydalen
NO-0424 OSLO
NORWAY
Sist oppdatert 10.02.2025