Publikasjoner fra ansatte i kompetansetjeneste – CFS/ME

Kompetansetjenesten er blant annet involvert i ett av forskningsprosjektene som fikk midler gjennom BEHOV_ME i 2017.

I tillegg har tjenesten hatt et samarbeid med et forskerteam i USA over flere år hvor data fra CFS/ME senterets tematiske register og biobank også inngår og hvor man utforsker symptombildet og ulike diagnostiske aspekter ved CFS/ME. Det siste året har tjenesten vært involvert i en oppfølgingsstudie av barn og unge med CFS/ME , som er initiert av forskerer og klinikere ved St. Olavs Hospital i Trondheim.

Kompetansetjenesten er også aktive i det Europeiske forskernettverket EUROMENE som ble opprettet i 2016. 

2024

• Brief Outpatient Rehabilitation Program for Post-COVID-19 Condition: A Randomized Clinical Trial. Av: Tom Farmen, Joel Selvakumar, Erin Cvejic, Ingar Heier, Maria Pedersen, Tone Langjordet Johnsen, Vegard Bruun Bratholm Wyller JAMA Netw Open. 2024 Dec 2;7(12):e2450744 PMID: 39699896 
• Legg vekt på positive tegn ved diagnostisering av funksjonell nevrologisk lidelse.Av: Sverre Myren, Helene Helgeland Tidsskr Nor Legeforen 24;144(11)PMID: 39319769
• Hypnosis in the Treatment of Functional Somatic Symptoms in Children and AdolescentsAv: Helene Helgeland, Blanche Savage, Kasia Kozlowska. Bok utgitt Taylor & Francis; eBook ISBN9781003449126. 2024
• Funksjonelle somatiske symptomer og den prediktive hjernemodellen Av: Herner Linn B, Maria Pedersen.  Psykologtidsskriftet  

2023

• Chronic fatigue syndromes: real illnesses that people can recover from Av: Alme Tomas Nordheim. Andreasson Anna. Asprusten Tarjei Tørre. Bakken Anne Karen. Beadsworth Michael Bj. Boye Birgitte. Brodal Per Alf. Brodwall Elias Myrstad. Brurberg Kjetil Gundro. Bugge Ingrid. Chalder Trudie. Due Reidar. Eriksen Hege Randi. Fink Per Klausen. Flottorp Signe Agnes. Fors Egil Andreas. Jensen Bård Fossli. Fundingsrud Hans Petter. Garner Paul. Havdal Lise Beier. Helgeland Helene. Jacobsen Henrik Børsting. Johnson Georg Espolin. Jonsjö Martin. Knoop Hans. Landmark Live. Launes Gunvor. Lekander Mats. Linnros Hannah. Lindsäter Elin. Liira Helena. Linnestad Lina. Loge Jon Håvard. Lyby Peter Solvoll. Malik Sadaf. Malt Ulrik Fredrik. Moe Trygve. Norlin Anna-Karin. Pedersen Maria. Pignatiello Siv Elin. Rask Charlotte Ulrikka. Reme Silje Endresen. Roksund Gisle. Sainio Markku. Sharpe Michael. Thorkildsen Ruth Foseide. van Roy Betty. Vandvik Per Olav. Vogt Henrik. Wyller Hedda Bratholm. Wyller Vegard Bruun Bratholm. Scandinavian journal of primary health care 2023. PMID: 37740918 

• Illness-Promoting Psychological Processes in Children and Adolescents with Functional Neurological Disorder.Av: Kozlowska Kasia. Schollar-Root Olivia. Savage Blanche. Hawkes Clare. Chudleigh Catherine. Raghunandan Jyoti. Scher Stephen. Helgeland Helene. Children (Basel, Switzerland). 2023 PMDI 38002815

• The biopsychosocial board—A conversation tool for broad diagnostic assessment and identification of effective treatment of children with functional somatic disorders Av: Helene Helgeland, Inger H. Gjone, Trond H. Diseth. Human Systems: Therapy Culture and Attachments 2022, Vol 2(3) 144-157

2022

• No replication of previously reported association with genetic variants in the T cell receptor alpha (TRA) locus for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Av: Marthe Ueland, Riad Hajdarevic,Olav Mella, Elin B.Strand, Daisy D.Sosa, Ola D. Saugstad, Øystein Fluge, Benedicte A Lie, Marte K Viken. Transl Psychiatry 2022 Jul 1;12(1):277. Epub 2022 jul 11 PMDI: 35821115
• Genetic association study in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) identifies several potential risk loci. Av: Riad Hajdarevic, Asgeir Lande, Jesper Mehlsen, Anne Rydland, Daisy D. Sosa, Elin B. Strand, Olav Mella, Flemming Pociot, Øystein Fluge, Benedicte A.Lie, Marte K.Viken. Brain Behav Immun 2022 May;102():362. Epub 2022 mar 19, PMID:35318112 
• Subjective and objective cognitive function in adolescent with chronic fatigue following Epstein-Barr virus infection.                                                                Av: Merete Glenne Øie, Astrid Sofie Buer Rødø, Maria Sletten Bølgen, Maria Pedersen, Tarjei Tørre Asprusten, Vegard Bruun Bratholm. J Psychosom Res 2022 Dec;163():111063. Epub 2022 okt 17. PMID: 36327530
• The biopsychosocial model in paediatric clinical practice-An interdisciplinary approach to somatic symptom disorders.Av: Stein, Førde, Linn Breen Herner, Ingrid B Helland, Trond H Diseth. Acta Paediatr 2022 Nov;111(11):2115. Epub 2022 sep. 3. PMID:36000514

2021

• Fine mapping of the major histocompatibility complex (MHC) in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) suggests involvement of both HLA class I and class II loci.Av: Riad Hajdarevic, Asgeir Lande, Ingrid Rekeland, Anne Rydland, Elin B Strand, Daisy D Sosa, Lisa E Creary, Olav Mella, Torstein Egeland, Ola D Saugstad, Øystein Fluge, Benedicte A Lie, Marte K Viken. Brain Behav Immun 2021 11;98():101-109. Epub 2021 aug 14, PMID: 34403736
• Evaluating Routine Blood Tests According to Clinical Symptoms and Diagnostic Criteria in Individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.Av: Ingrid H Baklund, Toril Dammen, Torbjørg Åge Moum, Wenche Kristiansen, Daysi Sosa Duarte, Jesus Castro-Marrero, Ingrid B Helland, Elin Bolle Strand, J Clin Med 2021 Jul 14;10(14). Epub 2021 jul 14, PMID: 34300271
•  Factors related to educational adaptations and social life at school experienced by young people with CFS/ME: a qualitative study. Av: Wenche Ann Similä, Torunn Hatlen Nøst, Ingrid B Helland, Torstein Baade Rø, BMJ Open 2021 11 18;11(11):e051094. Epub 2021 nov 18, PMID: 34794992

• European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe.Av: Nacul L, Authier FJ, Scheibenbogen C, Lorusso L, Helland IB, Martin JA, Sirbu CA, Mengshoel AM, Polo O, Behrends U, Nielsen H, Grabowski P, Sekulic S, Sepulveda N, Estévez-López F, Zalewski P, Pheby DFH, Castro-Marrero J, Sakkas GK, Capelli E, Brundsdlund I, Cullinan J, Krumina A, Bergquist J, Murovska M, Vermuelen RCW, Lacerda EM.Medicina (Kaunas) 2021 May 19;57(5). Epub 2021 mai 19.PMID:34069603

2020

• Health-related quality of life in Norwegian adolescents living with chronic fatigue syndrome.Av: Similä WA, Halsteinli V, Helland IB, Suvatne C, Elmi H, Rø TB. Health Qual Life Outcomes 2020 Jun 05;18(1):170. Epub 2020 jun 5. PMID:32503553

• Patients' experiences and effects of non-pharmacological treatment for myalgic encephalomyelitis/chronic fatigue syndrome - a scoping mixed methods review.Av: Mengshoel AM, Helland IB, Meeus M, Castro-Marrero J, Pheby D, Bolle Strand E. Int J Qual Stud Health Well-being 2020 Dec;15(1):1764830.PMID:3243299
• Human Leukocyte Antigen alleles associated with Myalgi Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)Av: Asgeir Lande, Øystein Fluge, Elin B Strand, Siri T. Flpm, Daysi D. Sosa, Olav Mella, Torstein Egeland, Sci Rep 2020 03 24;10(1):5267. Epub 2020 mar 24 PMID: 32210306
• Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology.Av: Estévez-López F, Mudie K, Wang-Steverding X, Bakken IJ, Ivanovs A, Castro-Marrero J, Nacul L, Alegre J, Zalewski P, Słomko J, Strand EB, Pheby D, Shikova E, Lorusso L, Capelli E, Sekulic S, Scheibenbogen C, Sepúlveda N, Murovska M, Lacerda E.  J Clin Med 2020 May 21;9(5). Epub 2020 mai 21 PMID: 32455633

2019

• Biopsyksososialt perspektiv på CFS/ME: Av: Ingrid B.Helland, PAIDOS nr 02/2019 

• Smerte kan begrense fysisk aktivitet og sosial deltakelse hos pasienter med CFS/ME: Av. Strand EB, BESTPRACTICE psykiatri/nevrologi ( 2019) nr 40 s18-21

• Corrigendum: Unperturbed Cytotoxic Lymphocyte Phenotype and Function in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients.Av: Jakob Theorell, Indre Bileviciute-Ljungar, Bianca Tesi, Heinrich Schulms, Mette Sophie Johnsgaard, Babak Asadi-Azarbaijani, Elin Bolle Strand, Yenan T. Bryceson. Front Immunol 2019;10():350. Epub 2019 mar 11, PMID: 30915066

• Energy envelope maintenance among patients with myalgic encephalomyelitis and chronic fatigue syndrome: Implications of limited energy reserves.Av:O'connor K, Sunnquist M, Nicholson L, Jason LA, Newton JL, Strand EB, Chronic Illn 2019 03;15(1):51-60. Epub 2017 des 12 PMID: 29231037

• Pain is associated with reduced quality of life and functional status in patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.Av: Strand EB, Mengshoel AM, Sandvik L, Helland IB, Abraham S, Nes LS.Scand J Pain. 2019 Jan 28;19(1):61-72. PMID: 30325738 

• Myalgic encephalomyelitis/chronic fatigue Syndrome (ME/CFS): Investigating care practices pointed out to disparities in diagnosis and treatment across European Union. Av: Strand EB, Nacul L, Mengshoel AM, Helland IB, Grabowski P, Krumina A, Alegre-Martin J, Efrim-Budisteanu M, Sekulic S, Pheby D, Sakkas GK, Sirbu CA, Authier FJ, PLoS One 2019:14(12):e0225995. Epub 2019 des 5, PMID: 31805176

2018

• Kan nåværende funksjon være et mål på redusert funksjonsnivå hos CFS/ME-pasienter?Av: Elin B Strand, Ingrid B Helland, Best practice, Revmatologi 2018; volum 8(36) s.20-23

• Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe-the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review.Av:Estévez-López F, Castro-Marrero J, Wang X, Bakken IJ, Ivanovs A, Nacul L, Sepúlveda N, Strand EB, Pheby D, Alegre J, Scheibenbogen C, Shikova E, Lorusso L, Capelli E, Sekulic S, Lacerda E, Murovska M; BMJ Open 2018 Sep 04:8(9):e020817. Epub 2018 sep 4 PMID: 30181183

2017

• Examining those Meeting IOM Criteria Versus IOM Plus Fibromyalgia.Av: Jason LA, McManimen S, Sunnquist M, Newton JL, Strand EB. Neurology (ECronicon) 2017;5(1):19-28. Epub 2017 mar 8 PMID: 28713879

• The European ME/CFS Biomarker Landscape project: an initiative of the European network EUROMENE.Av: Scheibenbogen C, Freitag H, Blanco J, Capelli E, Lacerda E, Authier J, Meeus M, Castro, Freitag H, Blanco J, Capelli E, Lacerda E, Authier J, Meeus M, Castro Marrero J, Nora-Krukle Z, Oltra E, Strand EB, Shikova E, Sekulic S, Murovska M. J Transl Med 2017 Jul 26;15(1):162. Epub 2017 jul 26. PMID:28747192

• Clinical Criteria Versus a Possible Research Case Definition in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis - PubMed Av: Jason LA, McManimen S, Sunnquist M, Newton JL, Strand EB. Fatigue 2017;5(2):89-102. Epub 2017 mar 6 PMID:29062593

• Energy envelope maintenance among patients with myalgic encephalomyelitis and chronic fatigue syndrome: Implications of limited energy reserves - PubMed Av: O'connor K, Sunnquist M, Nicholson L, Jason LA, Newton JL, Strand EB.Chronic Illn 2019 03;15(1):51-60. Epub 2017 des 12  PMID: 29231037

2016

• Metabolic profiling indicates impaired pyruvate dehydrogenase function in myalgic encephalopathy/chronic fatigue syndrome. Av: Fluge Ø, Mella O, Bruland O, Risa K, Dyrstad SE, Alme K, Rekeland IG, Sapkota D, Røsland GV, Fosså A, Ktoridou-Valen I, Lunde S, Sørland K, Lien K, Herder I, Thürmer H, Gotaas ME, Baranowska KA, Bohnen LM, Schäfer C, McCann A, Sommerfelt K, Helgeland L, Ueland PM, Dahl O, Tronstad KJ. JCI Insight 2016 Dec 22;1(21):e89376. Epub 2016 des 22 PMID: 28018972 

• Case definitions integrating empiric and consensus perspectives Av:Jason LA, McManimen S, Sunnquist M, Brown A, Furst J, Newton JL, Strand EB. Fatigue 2016;4(1):1-23. Epub 2016 jan 19, PMID: 27088059

• The Relationship between Age and Illness Duration in Chronic Fatigue Syndrome Av: Kidd E, Brown A, McManimen S, Jason LA, Newton JL, Strand EB, Diagnostics (Basel) 2016 Apr 22;6(2). Epub 2016 apr 22, PMID: 27110826

• Housebound versus nonhousebound patients with myalgic encephalomyelitis and chronic fatigue syndromeAv:Pendergrast T, Brown A, Sunnquist M, Jantke R, Newton JL, Strand EB, Jason LA, Chronic Illn 2016, Dec;12(4):292-307. Epub 2016 apr 28 PMID: 27127189 

2015

• Coping with chronic fatigue syndrome: a review and synthesis of qualitative studies Av:Irma Pinxsterhuis, Elin B. Strand & Unni Sveen, Online: 27. apr. 2015: pages: 173-188 DOI:10.1080/21641846.2015.1035519

• From Chaos and insecurity to understanding and coping Av: Irma Pinxsterhuis, Elin B Strand and Unni Steen, British Journal of Guidnace & Counselling, 2015, vol:43; 04, 463-475

•  Comparing and contrasting consensus versus empirical domains Av: Leonard A. Jason, Bobby Kot, Madison Sunnquist, Abigail Brown, Jordan Reed, Jacob Furst, Julia L. Newton, Elin Bolle Strand & Suzanne D. Vernon, pages 63-74 DOI:10.1080/21641846.2015.1017344, Published online: 26 Mar 2015